Living with a sickle cell disorder can be challenging for many reasons. It is important that patients, family members, and health care professionals working with patients affected by sickle cell disorders are able to access support in a timely manner by trained professionals who are knowledgeable about sickle cell disorders. What is Clinical/Health Psychology? Clinical/Health …
For patients with sickle cell and thalassaemia the transition from paediatric to adult services can be a daunting change. Patients will not only have to meet and get to know different teams, but some will also have to navigate different hospital sites. In addition, there is a greater autonomy in adult services and patients will …
World Thalassaemia Day is celebrated on May 8th every year in order to raise awareness of the disease around the world. Thalassaemia is the umbrella name for a group of inherited conditions that affect haemoglobin. People with the condition produce too little haemoglobin or none at all, which can result in severe anaemia. Thalassaemia, along …
Get Involved We are looking for patients to join the steering committee for the following research project: An Investigation into Transfusion Therapy in Pregnant Women with Sickle Cell Disease We are looking for adult patients who have experience of pregnancy to join the steering committee for this project. The role will involve overseeing governance of the …
Are you interested in sickle cell research? (Updated) Read More »